The Experience of Alzheimer's Disease: Life Through a Tangled Veil
June 2001, ©2001, Wiley-Blackwell
Chapter 1. Ways of Understanding the Effects of the Disease.
Chapter 2. Language and Communication.
Chapter 3. Excess Disability: The Potential Impact of Others in the Afflicted Person's Social World.
Chapter 4. The Maintenance of Self-Esteem.
Chapter 5. The Alzheimer's Disease Sufferer as a Semiotic Subject.
Chapter 6. Goals, Intentions, and the Alzheimer's Disease Sufferer's Predicament in Light of Critical Personalism.
Chapter 7. Selfhood and the Alzheimer's Disease Sufferer.
Chapter 8. The Tangled Veil is Also a Mirror.
- Helps readers to understand the experience of suffering Alzheimer's Disease.
- Incorporates the actual words of afflicted persons.
- Focuses on constructive ways of improving the lives of sufferers and their carers.
- Examines the intact abilities of Alzheimer's sufferers.
"This is the finest book thus far written about the experience
of Alzheimer's disease. Readers will be deeply impressed by Sabat's
many detailed observations and interpretations of the psychological
needs of persons with dementia, and with his case examples of how
responding to these needs can be beneficial. This book is an
immediate classic not only because it qualitatively defines the
experience of dementia better than all previous attempts, but also
because is humanely releases the reader from the grip of invalid
and ultimately harmful assumptions about the deeply forgetful."
Stephen G. Post, Center for Biomedical Ethics, CWRU
"Steven Sabat's book points the way to a soundly based and
eminently humane approach to dealing with the problems of language
and communication that are encountered in Alzheimer's disease.
Linguists and psycholinguists could learn a great deal from him."
Roy Harris, Editor of the journal, Language and
"In this masterly and original study Steven Sabat introduces us
to a cast of characters, each in his or her own way struggling to
maintain a sense of self and to preserve a place of dignity and
value in what remains of their life worlds. As we follow Dr. B,
Mrs. D and Dr. M and the others through various real life episodes
we begin to see that there are possibilities for the enhancement of
the lives of even the most seriously disadvantaged, provided we
continue to view them as people who are, in all that really
matters, like ourselves." Rom Harré, Linacre College
"In his deep commitment to discovering and honoring the
experience of selfhood, Sabat has penetrated the tangled veil of
Alzheimer's to reveal with illuminating scholarship, uncommon
empathy, and profoundly skilled listening, the enduring humanity of
persons with the disease." Lisa Snyder, MSW, University of
California, San Diego and Alzheimer's Disease Research
"Rarely has a book so amply fulfilled the promise of its title!
Steven Sabat's unique ability to interpret the life worlds of his
patients, his scholarly grasp of the research literature, and his
vivid case histories, set a new standard in understanding the
experience of Alzheimer's Disease. In an age of neuroscience and
genetic determinism, his book is a timely reminder that mental
disorder, even in cases of obvious "brain disease", may be a
product as much of dysfunctional treatments as of dysfunctional
brains. " K.W.M. Fulford, University of Oxford & University
"This is truly a humane and scholarly treatise on the lived
experience of Alzheimer's disease. Sabat guides us beyond the
shattered biomedical world of patients diagnosed with dementia to
reveal them still as people with intact capabilities. A "must read"
for anyone involved in the assessment, diagnosis, and treatment of
AD." Phyllis Braudy Harris, John Carroll University.
"This is a "must read" for any practitioner whose clientele
includes patients with Alzheimer's disease. It combines humanity,
humility and a clear conceptual framework that can be put to
practical use. While captivating the reader, Sabat provides
insights that can be extremely helpful in clinical practice and
program development". Michael Gordon, University of Toronto,
Canadian Medical Association Journal, February 2002
"Sabat has written a complex, thought-provoking book which aims
to give some insight into the subjective experience of Alzheimer's
disease. [...] The book is interspersed with the voices of
Alzheimer's disease patients and Sabat displays warmth, empathy and
respect for the individuals described." R Clafferty, Forth
Valley Primary Care NHS Trust, Psychiatric Bulletin, January
"this book is a rich source of people with dementias’ experiences of having the condition, described using many examples of their own words and conversations ... provides a useful insight into what it might feel like to have dementia, and challenges us to reflect on how we interact with people with the condition. It is thus a useful text for psychiatrists and students alike who want a basic grounding in social theories as applicable to dementia and an evidence base for person-centred approaches to dementia care, and is a rich source of data for those who already ascribe to this philosophy." Claire Surr, Bradford Dementia Group, Bulletin of Mental Health in Old Age, September 2004