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Understanding Organ Donation: Applied Behavioral Science Perspectives

ISBN: 978-1-4051-9213-2
392 pages
December 2009, Wiley-Blackwell
Understanding Organ Donation: Applied Behavioral Science Perspectives (1405192135) cover image


This highly important book introduces the realm of organ donation, providing an overview of the current situation, highlighting the challenges, summarizing past research,  and providing guidance for future research.
  • The first book to bridge the gap between applied research and the social and behavioral issues surrounding organ donation
  • An impressive collection of contributors from a range of both practitioners and scientists actively working in the field
  • Provides a concrete example of how evidence-based research and theory can be applied with real-world value
  • Explores future directions of organ donation and research including community-based health interventions, ethical considerations, and advancing donor registration
  • The latest publication in the prestigious Claremont Applied Social Psychology Series
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Table of Contents

List of Contributors x

Preface xiv
Jason T. Siegel and Eusebio M. Alvaro

Acknowledgments xxi

Introduction and Overview 1

Chapter 1: Applying Psychology to Health Behavior Interventions: Not Last Decade’s Approach 3
Stuart Oskamp

Chapter 2: Organ Donation: An Overview of the Field 13
Mary Ganikos

Part I: Media and Community Interventions 41

Chapter 3: Where Have We Been and Where to Next: A Review and Synthesis of Organ Donation Media Campaigns 43
Eusebio M. Alvaro and Jason T. Siegel

Chapter 4: The Effectiveness of the Donate Life—African American Campaign in Minneapolis–St. Paul 64
David M. Radosevich, Susan Mau Larson, Tiffany Scott, Clarence Jones, William Tendle, and Susan Gunderson

Chapter 5: Organ Donation and Transplantation: A New Tradition of Sharing for Alaska Natives 83
Margaret D. Allen and Barbara Stillwater

Chapter 6: First-Person Consent Ohio Donor Registry: The Influence of the First-Person Consent Registry on Increasing Organ Donation 98
Kimberly Downing and Linda Jones

Chapter 7: Improving Organ Donation in Chinese Communities in New York: Perspectives From Consortium Partners 119
Paul L. Hebert, Julia Rivera, Kelly Eng, Regina Lee, and Susan Seto-Yee

Chapter 8: Intervention Research With American Indian, Alaska Native, and First Nations Communities: An Organ and Tissue Donation Exemplar 132
Nancy L. Fahrenwald

Part II: Organizational Interventions 149

Chapter 9: Behavioral Research in Hospital Settings: The Family Communication Coordinator (FCC) Protocol and Research Applications in Organ Donation 151
Diane Dodd-McCue

Chapter 10: Design and Evaluation of Work Site Promotions of Organ Donation: Real-World Challenges and Strategies to Address Them 164
Michael T. Quinn, Jackie Gnepp, G. Caleb Alexander, Diane Hollingsworth, Kate Grubbs O’Connor, Willa Lang, Joshua Klayman, and David Meltzer

Chapter 11: Home Care Association of Louisiana (HCLA) Donate Life Workplace Partnership for Organ and Tissue Donation 177
Carolyn C. Johnson and Larry S. Webber

Chapter 12: Promoting Organ Donation Through College Student Campaigns 200
Thomas Hugh Feeley, Ashley E. Anker, Donald E. Vincent, and Carla R. Williams

Chapter 13: Take Time to Talk: Improving Communication Between Recovery Professionals and Funeral Directors 221
Catherine Paykin, Gigi Politoski, and Linda Singleton-Driscoll

Chapter 14: The Challenges of Conducting and Evaluating Organ Donation Campaigns 234
Susan E. Morgan

Part III: Broad Perspectives and Future Directions 247

Chapter 15: Community Organizations and Applied Research: Project Initiation, Implementation, and Dealing With Those Applied Researchers 249
Sara Pace Jones and David Bosch

Chapter 16: Evaluating the Effects of Community-Based Health Interventions: Seeking Impact and Saving Lives via Organ and Tissue Donation Promotion Efforts 257
Robert L. Fischer

Chapter 17: The Value of Qualitative Studies of Interpersonal Conversations About Health Topics: A Study of Family Discussions of Organ Donation and Illustrations 272
Anita Pomerantz

Chapter 18: Ethically and Effectively Advancing Living Donation: How Should It Be Done? 292
Amy D. Waterman and James R. Rodrigue

Chapter 19: A Dawning Recognition of Factors for Increasing Donor Registration: The IIFF Model 313
Jason T. Siegel, Eusebio M. Alvaro, and Zachary P. Hohman

Chapter 20: There’s Nothing So Practical . . . Theoretical Translations and Organ Donation 331
William D. Crano

Author index 344

Subject index 353

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Author Information

Jason T. Siegel is part of the Research Faculty at Claremont Graduate University’s School of Behavioral and Organizational Sciences. Dr. Siegel, Co-director of the Institute of Health Psychology and Prevention Science, has been researching organ-donation-related behavior for nearly a decade.

Eusebio M. Alvaro is a Research Faculty member at Claremont Graduate University’s School of Behavioral and Organizational Science where he is Co-Director of the Institute of Health Psychology and Prevention Science. He is a behavioral scientist conducting research on overcoming resistance to health behavior change.

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"This work represents thousands of hours of effort in the understanding of individual decision-making and the promotion of positive outcomes in organ donation. The variety of approaches used with different populations in different settings that have been found to be more or less effective based on sound field-based research and evaluation is the hallmark of this work. Practitioners can get great insight into promoting better health behaviors and the greatest human to human gift of all and researchers can get great insight into the complexities of conducting research and evaluation in the messy real world."
J. Jackson Barnette, Colorado School of Public Health, University of Colorado Denver

"Over a relatively short period of time, a relatively small group of dedicated professionals have sought to accomplish a great purpose...to eliminate deaths on the transplant waiting list. This book chronicles the breadth and depth of their research into changing human behaviors which in many cases have never been studied, or even fully described, before. As such, it is a wonderful contribution to an ever-growing field still pursuing the ultimate goal of eliminating deaths on the waiting list."
Jeffrey P. Orlowski, Chief Executive Officer, Center for Donation and Transplant, Albany, NY, USA

"Siegel and Alvaro have gathered the experience and perspectives of some of the field’s most respected professionals and scholars. For anyone seeking to apply recent developments and contribute research in their own right, Understanding Organ Donation goes a long way toward delivering on the promise of its title."
Bryan Stewart, President, Donate Life California

"With hundreds of thousands of lives on the line, we don’t have the luxury of guesswork. This book shows us how to apply evidence-based theory with lifesaving outcomes."
G. David Fleming, President and CEO, Donate Life America

"Understanding Organ Donation is a groundbreaking volume on the topic of vital importance to the public and scientific community. The book is informative in its overview of the current approaches, it is insightful in its detection of the challenges, and it is extremely useful in providing guidance to researchers and activists for meeting those challenges."
Radmila Prislin, San Diego State University

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