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Fetal Alcohol Spectrum Disorder: Management and Policy Perspectives of FASD

Edward P. Riley (Editor), Sterling Clarren (Editor), Joanne Weinberg (Editor), Egon Jonsson (Editor)
ISBN: 978-3-527-32839-0
482 pages
December 2010, Wiley-Blackwell
Fetal Alcohol Spectrum Disorder: Management and Policy Perspectives of FASD (3527328394) cover image
Reflecting the recent increased public awareness of the topic, this is the first and most comprehensive resource for over a decade on the molecular basis, prevalence, treatment options, socioeconomic impact and prevention strategies of FADS. Edited by world-renowned experts, this compendium includes the latest research results to provide new insights and realistic estimations of FADS frequencies in Western communities.
An invaluable resource for every professional dealing with the diagnosis, prevention and treatment of FADS, from researchers via health professionals to social workers.
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PREFACE
Prenatal Alcohol Exposure, FAS, and FASD: An Introduction (Tanya T. Nguyen, Jennifer Coppens, and Edward P. Riley)

INCIDENCE, PREVALENCE AND ECONOMIC ASPECTS OF FASD
Researching the Prevalence and Characteristics of FASD in International Settings (Philip May)

Frequency of FASD in Canada and What This Means for Prevention Efforts (Suzanne C. Tough and Monica Jack)

Economic Burden of Fetal Alcohol Spectrum Disorder: A Health Policy Perspective (Thanh NX, Liz Dennett L, Phil Jacobs and Egon Jonsson)

CAUSES AND DIAGNOSING OF FASD
Direct and indirect mechanisms of alcohol teratogenesis; implications for understanding alterations in brain and behaviour fetal alcohol spectrum disorders (FASD) (Kristina A. Uban, Tamara Bodnar, Kelly Butts, Joanna H. Sliwowska, Wendy Comeau and Joanne Weinberg)

Genetic factors contributing to fetal alcohol spectrum disorder (Albert E. Chudley)

Diagnosis of Fetal Alcohol Spectrum Disorder: An overview (Gail Andrew)

PREVENTION POLICIES AND PROGRAMS/
FOR FASD
Fetal Alcohol Spectrum Disorder: A Preconception Prevention Initiative (Lola Baydala, Stephanie Worrell, and Fay Fletcher)

Bringing a women's health perspective to FASD prevention (Nancy Poole)

Next Steps in FASD Primary Prevention (Robin Thurmeier, Sameer Deshpande, Anne Lavack, Noreen Agrey, and Madgalena Cismaru)

Preventing Fetal Alcohol Spectrum Disorders: The Parent-Child Assistance Program (PCAP) Intervention with High-Risk Mothers (Therese M. Grant)

FASD in the perspective of primary health care (June Bergman)

FASD AND THE LEGAL SYSTEM

FASD and the Legal System -
Manitoba FASD Youth Justice Program: Addressing Criminal Justice Issues (Mary Kate Harvie, Sally E.A. Longstaffe, and Albert E.Chudley)

Understanding FASD: Disability and Social Supports for Adult Offenders (E. Sharon Brintnell, Patricia G. Bailey, Anjili Sawhney, Laura Kreftin, and Yagesh Bhambhani)

POLICY OPTIONS AND SUPPORT PROGRAMS FOR INDIVIDUALS WITH FASD

Policy development in Fetal Alcohol Spectrum Disorder for Individuals and Families Across the Lifespan (Dorothy Badry and Aileen Wight Felske)

The Impact of FASD: Children with FASD involved with the Manitoba Child Welfare System (Linda Burnside, Don Fuchs, Shelagh Marchenski and Andria Mudry with Linda De Riviere, Marni Brownell, Matt Dahl)

British Columbia's Key Worker and Parent Support program: Evaluation highlights and implications for practice and policy (Deborah Rutman, Carol Hubberstey, and Sharon Hume)

Fetal Alcohol Spectrum Disorders and Education Policy: Issues and Directions (Elisabeth Bredberg)

Shifting responsibility from the individual to the community (Audrey McFarlane)

A social work perspective on policies to prevent alcohol consumption during pregnancy (Mary Diana Berube)

A Cross-Ministry Approach to Fetal Alcohol Spectrum Disorder across the Lifespan in Alberta (Denise Milne, Tim Moorhouse, and Kesa Shikaze)

Critical considerations for intervention planning for children with FASD (John D. McLennan)

RESEARCH NEEDED ON FASD

FASD Research in Primary, Secondary, and Teritiary Prevention: What do we need to know now to build the next generation of health and social policy responses? (Amy Salmon, Sterling Clarren)

Focusing research efforts: What further research into FASD is needed? (Sara Jo Nixon, Robert A. Prather, and Rebecca J. Gilbertson)

PERSONAL VIEWS FROM PEOPLE LIVING WITH FASD

Living with FASD (Myles Himmelreich)
Charlene's Journey (Charlene Organ)

Appendix
Glossary
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Edward Riley is a Distinguished Professor in Psychology and Director of the Center for Behavioral Teratology, San Diego State University. Having received his Ph.D. from Tulane University he has spent most of his career researching the effects of prenatal alcohol exposure. He has authored over 225 scientific publications and has received numerous awards, including the Research Society on Alcoholism Distinguished Researcher Award, James Tharp Distinguished Researcher Award, and the National Organization on FAS Research Recognition Award. He chaired the US National Task Force on FAS/FAE between 2000-2004 and currently serves on the NIH Advisory Council on Alcohol Abuse and Alcoholism.
Sterling Clarren is CEO and Scientific Director of the Canada Northwest FASD Research Network and Clinical Professor of Pediatrics at the Faculty of Medicine of the University of British Columbia; Clinical Professor of Pediatrics.
Joanne Weinberg is Professor and Distinguished University Scholar in the Department of Cellular & Physiological Sciences at the University of British Columbia. She obtained her B.A. from Brown University, an M.A.T. in Natural Sciences from Harvard University, and a PhD in Neuro- and Biobehavioral Sciences from Stanford University Medical School. After Postdoctoral research at Stanford, the University of California, San Francisco, and the University of British Columbia, she joined the Faculty of Medicine at UBC in 1982. She has published more than 125 scientific papers, chapters and reviews, and has received numerous honors and awards, including UBC Killam Research and Killam Teaching Awards, the Henry Rosett Distinguished Investigator Award from the FASD Study Group of the Research Society on Alcoholism, and a MERIT award from the National Institute on Alcohol Abuse and Alcoholism.
Egon Jonsson is director and CEO of the Institute of Health Economics, and professor at the University of Alberta, public health sciences. For 20 years he was a professor of health economics at the Karolinska Institute, Stockholm, Sweden. He was also director of the Swedish Council on Health Technology Assessment (SBU), worked for WHO Euro, and was a health policy advisor at the ministry of health in Hanoi, Vietnam. He has co-edited two successful Wiley-VCH titles during his time at SBU: "Treating and Preventing Obesity" and "Treating Alcohol and Drug Abuse".
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"This is a unique and comprehensive review of a significant health problem in the United States and around the world. The Canadian experts have reviewed all aspects of the problem and produced a reference that will serve as a guide to future health policy and research, both molecular and social. The personal descriptions by two very empathetic individuals of the effects of this disorder on their lives make the book even more appealing." (Doody's, 19 August 2011)
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