Healthcare Ethics and Human Values: An Introductory Text with Readings and Case Studies
DescriptionThis volume illustrates the central importance of diversity of human values throughout healthcare. The readings are organized around the main stages of the clinical encounter from the patient's perspective. They run from staying well and 'first contact' through to either recovery or to long-term illness, death and dying.
Many Voices: Human Values in Healthcare Ethics.
Part I: Healthcare Ethics: Multidisciplinary Approaches.
1. Towards a Feminist Ethics of Health Care. (Susan Sherwin).
2. A Deliberative Approach to Bioethics. (Michael Parker).
3. Bodies and Persons. (S. Kay Toombs).
4. Alternatives to Principlism: Phenomenology, Deconstruction, and Hermeneutics. (Guy A. M. Widdershoven).
5. Questions of Personal Autonomy. (Morwenna Griffiths).
6. A Different Voice in Psychiatric Ethics. (Gwen Adshead).
7. Can there be an Ethics of Care? (Peter Allmark).
8. The Literary Nature of Ethical Inquiry. (Tod Chambers).
9. Two Theories of Modernity. (Charles Taylor).
Part II: Staying Well: Screening and Preventive Medicine.
10. What Counts as Success in Genetic Counseling? (Ruth F. Chadwick).
11. The Genetic Underclass. (Jay Rayner).
12. Ethical Issues in Pre-Cancer Testing: The Parallel with Huntington's Disease. (Donna L Dickenson).
13. Eugenics and Public Health in American History. (Martin S. Pernick).
14. Parental Choice? Letter from a Doctor as a Dad. (Julian Savulescu).
15. Do We Really Want to Know the Odds? (David Runciman).
Part III. Falling Ill.
16. Premonition. (Jenny Lewis).
17. Emotional Disturbance: Philip and Lucy. (Priscilla Alderson and Chris Goodey).
18. Healing and Incurable Illness. (S. Kay Toombs).
19. "My Story is Broken; Can You Help Me Fix It?": Medical Ethics and the Joint Construction of Narrative (Howard Brody).
20. Spiritual Experience and Psychopathology. (Mike Jackson and K. W. M. Fulford).
21. The Occurrence of High Levels of Acute Behavioral Distress in Children and Adolescents Undergoing Routine Venipunctures. (G. Bennett Humphrey et al.).
22. Benjamin's Story. (Eric D. Kodish).
Part IV: First Contact.
23. Doctor. (Jenny Lewis).
24. Confidentiality in Child Psychiatry. (Emilio Mordini).
25. Diagnostic Styles in Clinical Relationships. (Guy A. M. Widdershoven and Wies Weijts).
26. "Not Clinically Indicated": Patients' Interests or Resource Allocation? (Tony Hope, David Sprigings, and Roger Crisp).
27. Body Language. (Priscilla Alderson).
28. Baby Poop. (Perri Klass).
29. Ethnicity and Attitudes Toward Patient Autonomy. (Leslie J. Blackwell et al).
30. Power Plays. (Perri Klass).
31. The "Kinder Egg": Some Intrapsychic, Interpersonal and Ethical Implications of Infertility Treatment and Gamete Donation. (Joan Raphael-Leff).
32. Gynecological Gatekeepers. (Naomi Pfeffer).
33. Fertility Zone. (Patricia Eakins).
Part V: Deciding What the Problem Is.
34. Becoming an Amazon. (Jenny Lewis).
35. The Hundred Secret Senses. (Amy Tan).
36. The Abortion. (Anne Sexton).
37. Consent as Empowerment: The Roles of Postmodern and Narrative Ethics. (John McMillan and Grant Gillett).
38. Life-Size. (Jenefer Shute).
39. But Didn't You Have the Tests? (Joanna Richards).
40. Capable People: Empowering the Patient in the Assessment of Capacity. (Dermot Feenan).
41. Kelly. (Rafael Campo).
Part VI: Negotiating a Treatment Plan.
42. Understanding the Enemy. (Jenny Lewis).
43. Patient-controlled Analgesia: Advantages, Disadvantages, and Ethical Issues in the Management of Pain in Sickle Cell Disease. (Veronica Thomas).
44. Grief Is Carved In Stone. (Sandra Gilbert).
45. Decisions, Decisions: How Do Parents View the Decision They Made About a Randomized Clinical Trial? (Claire Snowdon, Jo Garcia, and Diana Elbourne).
46. The Ethics of Social Research With Children: An Overview. (Virginia Morrow and Martin Richards).
47. Consent, Refusal and Emotional Disturbance: Philip and Lucy. (Priscilla Alderson and Chris Goodey).
48. "Partnership" is Not Enough: Professional–Client Relations Revisited. (Paul Cain.
49. Experiencing Care: Steve Ersser).
50. Organ Salvage Policies: A Need for Better Data and More Insightful Ethics. (Thomas H. Murray and Stuart J. Younger).
51. Rationing, Justice, and Ageism. (John Keown).
52. Cardiopulmonary Resuscitation. (Paul Cain).
53. An Analysis of CPR Decision-making by Elderly Patients. (Gwen M Sayers, Irene Schofield, and Michael Aziz).
54. Can the Elderly Tolerate Endoscopy Without Sedation? (Sam A. Solomon, Vijay K. Kajla, and Arup. K. Banerjee).
55. Fighting Spirit: The Stories of Women in the Bristol Breast Cancer Survey. (Myles Harris, Vicki Harris and Heather Goodare).
56. What We Want from Crisis Services. (Peter Campbell).
Part VII: Continuing Contact: Getting Well.
57. Wounded in Action. (Jenny Lewis).
58. Flee On Your Donkey. (Anne Sexton).
59. Quickening. (Oliver Sacks).
60. Emotional and Behavioural Disturbance: Philip and Lucy. (Priscilla Alderson and Chris Goodey).
61. Sonnet LXXIII. (William Shakespeare).
62. When You Are Old. (W. B. Yeats).
63. Setting Limits: Medical Goals in an Aging Society. (Daniel Callahan).
64. Going Blind. (Rainer Maria Rilke).
65. The Decision to Have Reconstructive Surgery. (Margaret Allott).
66. Survivor or Expert? Some Thoughts on Being Both. (Gill de la Cour).
67. A Story About the Body. (Robert Hass).
Part VIII: Continuing Contact: Chronic Illness, Disability, Deformity, Remission, and Relapse:.
68. The Way to Freedom. (Jenny Lewis).
69. Privacy and Display: Issues of Good Practice for Dermatologists. (Terence J. Ryan and Vineet Kaur).
70. The Politics of AIDS. (Virginia van der Vliet).
71. The Avon Mental Health Measure.
72. My Husband the Stranger: Part I. (Elizabeth Forsythe).
73. Caretakers' Views on Responsibilities for the Care of the Demented Elderly. (Mary Howell).
74. Who Defines Futility? (Stuart J. Youngner).
75. Nobody Nowhere. (Donna Williams).
76. The Body in Multiple Sclerosis: A Patient's Perspective. (S. Kay Toombs).
77. A Living Death. (Peter Lennon).
78. Across the Disability Divide: Whose Tragedy? (Sally French and John Swain).
79. AIDS: May Sarton.
Part IX: Continuing Contact: Dying.
80. Epilogue. (Jenny Lewis).
81. Selection from The Death of Ivan Ilyich. (Leo Tolstoy).
82. Subjective Values, Objective Good, and Incompetent Patients. (Tom Buller).
83. Falls. (Edward Lowbury).
84. Decisions Near the End of Life: Council on Ethical and Judicial Affairs, American Medical Association.
85. On The Suicide Threshold. (Kate Hill).
86. My Husband the Stranger: Part 2. (Elizabeth Forsythe).
87. A Death of One's Own. (Martin Hollis).
88. Selection from The Death of Ivan Ilyich. (Leo Tolstoy).
89. The Coevolution of Bioethics and the Medical Humanities with Palliative Medicine, 1967–97. (David Barnard).
90. Why I Don't Have a Living Will. (Joanne Lynn).
91. Mama Day. (Gloria Naylor).
92. The Devil. (Guy de Maupassant).
93. Talking to the Family. (John Stone).
94. To the Foot from Its Child. (Neruda).
"This rich and exciting collection highlights the diversity of values among patients and professionals in healthcare. It effectively uses narrative accounts along with more formal approaches to illustrate and illuminate diverse values in the clinical encounter. I strongly recommend this volume, and I look forward to using it in my courses."James F. Childress, University of Virginia
"A fascinating kaleidoscope of thoughts, analysis, and ideas covering a wide range of ethical issues." Kenneth C. Calman, University of Durham
"This is a feast of a book – poems, philosophical essays, memoirs, stories about patients and doctoring, even a little social science. It demonstrates that 'healthcare ethics,' unlike the medico-legal kind, must draw on a knowledge of the human condition and the variety of values brought to illness and care by people on both ends of the stethoscope." Kathryn Montgomery, Northwestern University Medical School, Chicago
"The range of styles of contributions from the short poems to the evidence-based pieces makes this a very different text. This volume certainly makes a good introduction to healthcare ethics... a welcome and refreshing addition to libraries and reading lists for those with an interest in bioethics." International Journal of Nursing Studies, Vol. 40, 2003
- Illustrates the central importance of diversity of human values throughout healthcare.
- Includes selections from literature and poetry, canonical and newly commissioned articles, and first-hand narrative by users, care givers and professionals.