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Hypertrophic Cardiomyopathy: For Patients, Their Families and Interested Physicians, 2nd Edition

Hypertrophic Cardiomyopathy: For Patients, Their Families and Interested Physicians, 2nd Edition

Barry J. Maron, Lisa Salberg

ISBN: 978-1-405-17256-1

Apr 2008, Wiley-Blackwell

128 pages

$33.99

Description

When there is a diagnosis of HCM in a family, this complete, easy-to-read guide is your essential resource for finding the answers to your many questions. In clear and straightforward language, it explains what hypertrophic cardiomyopathy is, what the symptoms are, and how it can be treated, as well as reviewing the genetic implications and offering candid lifestyle advice.


Drawing on the expertise of Dr. Barry Maron, an internationally recognized authority on HCM, the book addresses major questions and concerns of both patients and families. Fully revised to reflect the latest developments, Hypertrophic Cardiomyopathy: For patients, their families and interested physicians, Second Edition, is a valuable source of straightforward advice and dependable information for everyone who is affected by HCM.

Acknowledgments.

Dedication.

Foreword.

Introduction.

What is hypertrophic cardiomyopathy (HCM)?.

Historical perspective and names.

How common is HCM?.

What is the cause of HCM?.

Heart structure in HCM.

When does HCM develop?: HCM in infants and children.

Gender and race.

What are the symptoms of HCM?.

How is HCM diagnosed and what tests are used?.

Other investigations that may be useful.

General outlook for patients with HCM.

Complications of HCM.

Special considerations: Athletes and sports activities.

Treatments for HCM.

Is a cure available?.

Family screening.

What about having children?: Pregnancy and delivery.

Routine medical care.

General lifestyle advice.

Support and advocacy groups.

What research is being conducted?.

The 34 most frequently asked questions by patients about HCM, as.

addressed to the HCMA.

Glossary.

Key HCM References.

Appendix.

HCMA Membership Application.

Index

"The book Hypertrophic Cardiomyopathy: For patients, their families and interested physicians, Second Edition (ISBN: 9781405147101) was written by Barry J. Maron, MD and Lisa Salberg. It is meant to be a guide for those living with and/or caring for those with hypertrophic cardiomyopathy (HCM). It was published in December 2006 by Blackwell Futura, and is 128 pages long. The book also includes a foreword by Eugene Braunwald. Dr. Maron is the Director of the Hypertrophic Cardiomyopathy Center at the Minneapolis Heart Institute Foundation in Minneapolis, Minnesota. Lisa Salberg is Founder and President of the Hypertrophic Cardiomyopathy Association (HCMA) in Hibernia, New Jersey."

"Hypertrophic Cardiomyopathy: For patients, their families and interested physicians, Second Edition is very accurately targeted as the book itself claims, to patients, their families, and interested physicians (as well as other interested professionals). The authors have done a wonderful job of making the level of material understandable to lay people as well as presenting interesting and informative information for professionals.
The first section of the book describes the condition of hypertrophic cardiomyopathy in an objective way. The language used would seem non-threatening to someone who had this diagnosis, yet it is straightforward enough that appropriate action would be taken by people with the disease to get an accurate diagnosis and treatment. The authors also address the genetic issues of HCM in a way that gives guidance to families, helping them with the tools they need to seek guidance and medical attention so that potential risks are appropriately analyzed and treated.
The chapters on “General lifestyle advice” and “The 34 most frequently asked questions by patients about HCM, as addressed to the HCMA” are comprehensive and provide advice that is both realistic and believable. The authors repeatedly refer readers to their own physicians for final advice and analysis, thus not usurping the role of the primary care or personal physician. The book does provide the reader with enough information, however, that the patient knows what further questions to ask and would know if they needed to seek other opinions.
For the personal physician or clinic attempting to help patients with this diagnosis, there is abundant information on driving, insurance, Social Security, genetic testing, defibrillators, special age implications, support groups, research and other information, which would take the rest of us a long time to find. It is all presented in a very easy-to-read format.
I thought this book was a valuable tool for everyone in the intended audiences. It would be a great reference book to have in an electrophysiology department as well, for staff to read and for recommendation to patients. Personally, I enjoyed the book very much and would purchase it for myself as well as for my department.

For more information on ordering a copy of this book, please visit: www.blackwellcardiology.com
For more information on hypertrophic cardiomyopathy, please visit: www.4hcm.org"

Reviewed by Esther Weiss, RN, MSN, APN, Clinical Nurse Specialist, Cardiac Arrhythmia Services of EP Lab Digest - ISSN: 1535-2226 - Volume 3 - Issue 7 - March 2007 - Pages: 34 -



“This all-encompassing remit may reflect the move, certainly in British healthcare, to keep all parties well informed, and characterizes the greater partnership between healthcare professionals and the patients themselves…


Although it clearly explores issues about living in society with HCM, the different healthcare context does not detract from a highly useful text…


In just over 100 pages, a lot can be learnt from its informative and clear writing style for both patients and practitioners. A range of support group contact details from around the world are provided, together with a brief glossary of terms.” - Richard Hatchett, Principal Lecturer, London South Bank University, London: British Journal of Cardiac Nursing, August 2007, Vol 2 No 8

A comprehensive and straightforward text for patients and care providers



  • Takes into account all the changes over the past four years
  • A summary of key points at the end of each section
  • Provides easy to follow screening flow charts to help identify who in the family needs to be screened and how often
  • This complete guide covers, what the disease is, what the symptoms are, how it can be treated, the genetic implications, and lifestyle advice